This chapter of my life has been defined by vigilance—listening closely to my body, protecting my health, and navigating a constant undercurrent of fear.
I can’t go out and do many things, and there are many things I’m afraid to do—especially anything that involves people who could get me sick. Do I sound like a hypochondriac? Yes. But it’s warranted.
With my immune system weakened and fighting even harder than usual, every pain and ache has to be reported to my cancer care team so they can assess it, sort for urgency, and prepare next steps for diagnosis. For months, I had a persistent sensation that something was caught in my throat, making it painful to swallow. My team prescribed medication in case it was chemo-related sores or thrush. When that didn’t help, I was referred to an ENT.
And when I say I was referred, I know what that really meant: get evaluated for throat cancer.
Thankfully, that was ruled out. Instead, it turned out to be sinus drainage irritating my vocal cords from above, combined with acid reflux—something chemo makes worse—irritating them from below. A true team effort – just not the kind you want.
My knees ache even after short walks, and I get random muscle pains that come and go. These symptoms are actually pretty common with chemotherapy, which is comforting in a “great, I’m officially textbook” kind of way. More unsettling is the neuropathy: pain that feels like my veins are filled with menthol, while other areas feel intensely hot, like a heating pad pressed directly against my skin on high. That may not sound so bad, but when it’s something you’ve never felt before, it can be scary – especially when your brain’s default setting is now assume the worst, then verify.
This side effect is new for my care team, which didn’t surprise me too much. Many of the symptoms and reactions I’ve had so far haven’t been typical. Recently, these hot-and-cold neuropathy sensations have turned into persistent headaches. They aren’t really painful—just ongoing and annoying. But since I’ve been dealing with them for about two months, I now have a head MRI scheduled to rule out anything concerning. I’m not overly worried, but it will be a relief to eliminate the more serious possibilities, instead of letting my mind run wild at 2 a.m.
And then there are the hot flashes.
Oh boy. What a bitch!
One minute you’re sitting there, minding your own business, feeling relatively human. The next, it’s like your internal thermostat has been hijacked by a feral toddler who just discovered the HELL setting and refuses to let go. Comfortable warmth becomes a myth. A fairy tale. A thing that happens to other people.
You are no longer a person—you are a human microwave, cooking from the inside out. Your organs are sautéing. Your soul is sweating.
You take a cold shower, convinced this will fix things. Minutes later, you look like you ran a marathon in a sauna while wearing a snowsuit. The heat radiates off you so aggressively that people within a three-foot radius start questioning their own body temperature.
Then, without warning, your body realizes it has wildly overreacted.
The crazy toddler slams the dial straight to ARCTIC TUNDRA. You are suddenly drenched, shivering, and desperately hunting for the sweater you ripped off moments earlier—the same sweater you were fully prepared to light on fire out of spite. You stand there, wet and shaking, wondering how one body can experience every climate on Earth in under five minutes.
Every year, from Halloween through Christmas, I’m prone to sinus infections. Normally they’re annoying but manageable. When you have cancer, however, even a mild sinus infection is enough to postpone chemo until you’re better. It feels like living inside one long anxiety attack. You’re trying to avoid people, monitor symptoms, and not catch anything, all while worrying that a stuffy nose might derail your entire treatment timeline.
Despite everything, I finished my first round of chemotherapy today—four weeks later than expected.
I understand why it worked out this way, and I deeply respect my incredible cancer care team for prioritizing my safety. Still, it’s hard not to feel disappointed when you don’t move through treatment by the date you had envisioned.
As my triage nurse reminded me, “Peace of mind makes a huge difference too.”
I’m learning that getting through this safely matters more than getting through it quickly. This isn’t how I planned it, but it’s where I am – and for now, that has to be enough.